Night 9

In case you are counting, tonight with be our 9th night in the hospital.  We never imagined an ER visit to turn into a hospital marathon.  As frustrating and inconvenient in can be, we are so blessed!  We are still in awe of the amazing care and numerous specialties that are evaluating Maelee.  We are thankful that all of the specialties can work together and more efficiently while inpatient.  We are also thankful for the wonderful support we are receiving from people with childcare, meals, and prayers.  Thank you!

Today was fairly uneventful.  We never left the room!  We continued working on eating and drinking.  The eating department is going slightly better.  The drinking not so much.  Three sips today!  That.is.all.  Speech therapy is doing feeding therapy to help with eating but they are stumped as to why she won't drink ANYTHING!

Pediatric surgery consulted with us today to discuss the g-tube placement.  We were a bit weary about jumping to a g-tube, but it now seems to be the best option to get home.  Home is a great place to be!  The surgery team is going to try and coordinate as many procedures they can while Maelee is under general anesthesia.  They are particularly working to get dentistry involved.  Her teeth are very bad with a large amount of decay.  We assumed we would take care of her teeth at some point, but minimizing the number of times under anesthesia would be great.  Another blessing along this hospital journey---even if it is just a thought!

Thank you for your continued prayers.  We know that God has got this!

The crazies came to visit!

Thank you Thuong for providing a meal and Nathan's favorite food group: Reddi Whip!!